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FragileXSyndrome news

Main Line biopharm firm gets a boost from the FDA


Philadelphia Business Journal - Jan 3, 2017
The Food and Drug Administration has granted Orphan Drug Designation to an experimental therapy Marinus Pharmaceuticals is developing to treat Fragile X Syndrome. That prompts two questions: What is Fragile X Syndrome, and how is the Radnor, ...
 

FDA grants orphan drug status to ganaxolone for Fragile X syndrome


Healio - Jan 6, 2017
Fragile X syndrome is caused by an FMR1 gene mutation and can be diagnosed by several cognitive, behavioral and educational impairments. About 100,000 people in the U.S. have Fragile X syndrome, which affects 1 in 3,600 to 4,000 men and 1 in 4,000 ...
 

Zynerba starts phase 2 trial of ZYN002 in Fragile X syndrome


Pharmaceutical Business Review - Jan 4, 2017
“We anticipate having top line results for the FAB-C trial late in the first half of 2017. With an orphan drug designation granted by the Food and Drug Administration for Fragile X syndrome, we look forward to working with the FDA to bring a treatment ...
 

Fragile X Syndrome - premium items on eBay

Children with Fragile X Syndrome: A Parents' Guide


 

Modeling Fragile X Syndrome (2012 Edition) by Denman, Robert B. [Hardcover]


 

NEW Modeling Fragile X Syndrome by Paperback Book (English) Free Shipping


 

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Fragile X Syndrome books

Making Sense of Autism


by: Travis Thompson Ph.D.

When you're working with children who have autism, you're sure to have questions about a wide range of issues: challenging behavior, interventions, medications, effective partnerships with parents, and the nature of the disorder itself.

Think of this book as your "autism primer"—the one you need to read first to get a solid, balanced understanding of what autism is, how it affects behavior and learning, and what you can do to effectively work with children with autism from their preschool years through elementary school.
>> More info on Amazon

Speech and Language Development and Intervention in Down Syndrome and Fragile X Syndrome


Spotlighting two of the most prevalent and most researched genetically based disabilities—Down syndrome and Fragile X syndrome—this cutting-edge text clarifies the distinct speech and language issues associated with each disorder and helps readers conduct individualized assessment and intervention. An essential upper-level textbook and an invaluable professional reference, this book gives readers the up-to-date research and clinical insight they need to

  • fully understand both disabilities—the behaviors, characteristics, genetics, and treatments associated with each.
    >> More info on Amazon

    Fragile X Fred


    by: Julia Bassell, Jayne Dixon Weber, Jeannie Visootsak MD
    Look around you. Every person you meet has been molded by an intertwining of genetic information and personal experience. Fragile X syndrome is a genetic disorder that is not widely understood. This book aims to help people of all ages understand that although individuals with fragile X syndrome do have certain challenges, these challenges do not define them. This book is a valuable tool for educators, siblings, parents, and children with fragile X syndrome.
    >> More info on Amazon

    The Source for Fragile X Syndrome


    by: Gail Harris-Schmidt

    >> More info on Amazon

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    Fragile X Syndrome pictures on the web

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    Fragile X Syndrome videos

    What is Fragile X Syndrome


    Fragile X syndrome is a genetic condition that causes a range of developmental problems including learning disabilities and cognitive impairment. Usually ...
     

    Animation of Fragile X Syndrome


    Watch this short 3D animation to gain a simple understanding of how the genetics of Fragile X syndrome works and how it is passed down through the ...
     

    Understanding Fragile X


    This video, made in 2012, explains Fragile X syndrome, its signs and symptoms, treatments, and how it is passed on in families. The video features Dr Randi ...
     

    Fragile X journey with the Justus family


    Meet the Justus family as they speak openly about their journey with Fragile X Syndrome and how it affects their son, Tyler (age 5 in the video) - and learn about ...
     

    What is Fragile X Syndrome?


    What is fragile X Syndrome : http://tinyurl.com/WhatIsfragileXsyndrome Lear about fragile x Syndrome, Causes of fragile x syndrome, diagnosis of fragile x ...